Timeline for Using personal data for reproducible examples
Current License: CC BY-SA 4.0
4 events
| when toggle format | what | by | license | comment | |
|---|---|---|---|---|---|
| Nov 25 at 9:14 | vote | accept | dipetkov | ||
| Apr 8, 2022 at 16:46 | comment | added | Alexis | Also, for anyone interested, "anonymity" most often does not and cannot mean "impossible to identify" in an IRB context. Given that >90% of people in the USA can be uniquely ID'ed by birth date, zip code, and sex… before even getting into variables of substantive interest. See Ohm, P. (2009). Broken Promises of Privacy: Responding to the Surprising Failure of Anonymization (Legal Studies Research Paper No. 9; pp. 1–64). University of Colorado Law School. | |
| Apr 8, 2022 at 16:42 | comment | added | Alexis | +1 To be clear, though, HIPPA does not apply to data sets containing those variables if they are not collected in a health care context. So I, epidemiologist and not clinician, can use, say, a spirometer to collect spirometric measurements giving indications for COPD in a research context, while a clinician can use the same instrument and protocol to collect the same data in a diagnostic and health care context: my data are covered by IRB and the Common Rule, but not by HIPPA, whereas the clinician's data are covered by HIPPA (and maybe IRB, depending). I am in the USA. | |
| Apr 6, 2022 at 17:13 | history | answered | AdamO | CC BY-SA 4.0 |